Comments on: Failure to thrive http://notesfromhome.com/2006/09/27/failure-to-thrive/ Life. Home. Parenting. Food. Geek. Fri, 03 Feb 2012 15:52:48 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Laura Wintershttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-600 Laura Winters Fri, 27 Oct 2006 00:46:49 +0000 http://mostleast.com/?p=265#comment-600 Oh, My can I relate. My husband and I adopted a baby from Chicago that was born to a homeless Mom that had no prenatle care... She drank everyday and did crack 3 to 4 tme a week. When she went into labor she was going to put him in the dumpster of the hotel that she was staying in. Well to make a long story short my husband and I adopted him... That brought our family to 11 children.. all living at home. OK to the point he is full blown FAS and my huband and I can find NO ONE to talk to... We live in Maine and find no support. Our little guy is very failure to thrive 10 and a half months and weighs 15.6 lbs Help would someone who understands call me.... It would be God send to be able to talk with another Mother with a FAS and or failure to thrive baby.... Thankyou so much in advance. thankyou, Laura Winters Oh, My can I relate. My husband and I adopted a baby from Chicago that was born to a homeless Mom that had no prenatle care… She drank everyday and did crack 3 to 4 tme a week. When she went into labor she was going to put him in the dumpster of the hotel that she was staying in. Well to make a long story short my husband and I adopted him… That brought our family to 11 children.. all living at home. OK to the point he is full blown FAS and my huband and I can find NO ONE to talk to… We live in Maine and find no support.
Our little guy is very failure to thrive 10 and a half months and weighs 15.6 lbs Help would someone who understands call me….
It would be God send to be able to talk with another Mother with a FAS and or failure to thrive baby…. Thankyou so much in advance.
thankyou,
Laura Winters

]]> By: Kristenhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-599 Kristen Tue, 03 Oct 2006 16:40:41 +0000 http://mostleast.com/?p=265#comment-599 Hang in there, Ella. Keep being persistent with these doctors. Now that he's had that diagnosis, you should be seeing more proactive steps for their part. Take care! Hang in there, Ella. Keep being persistent with these doctors. Now that he’s had that diagnosis, you should be seeing more proactive steps for their part. Take care!

]]> By: Whymommyhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-598 Whymommy Tue, 03 Oct 2006 00:35:40 +0000 http://mostleast.com/?p=265#comment-598 Oh, Ella, I'm sorry to hear that. It's scary that your little guy is having such a hard time gaining weight.It is a very good thing, though, that the doctors are finally taking you seriously.When my little boy was born, he wouldn't nurse. Oh, sure, he nursed like a champ the first 48 hours in the hospital. Or we thought he did. (What can a first-time mom and the drop-by lactation specialist really observe in those first few hours after labor, though?) When we got him home, though, he wouldn't nurse. We were committed to breastfeeding and pushed through it, with regular trips to the doctor, the lactation consultant, books of all kinds, trying every hour or so, and he just wouldn't (couldn't?) get the hang of it. The hardest part? When the doctor said, "Look, babies have been learning to nurse for hundreds of thousands of years. He'll figure it out." We fed him with a syringe for weeks (to avoid nipple confusion), and kept talking to the lac specialist, and trying her suggestions, and it finally worked. He finally gained instead of lost weight, after dipping down to 5 pounds at several weeks of age. We were so thrilled to finally turn the corner. At that visit, the doctor, to his credit, apologized. When we had tearfully reported his comment to the lactation consultant in the same office, exhausted with frustration, she went and had a little chat with him. Not all babies figure it out. He sure got spanked that day!So yes, moms have a better understanding of what their babies need.All hope and cheer to you and your family. Oh, Ella, I’m sorry to hear that. It’s scary that your little guy is having such a hard time gaining weight.

It is a very good thing, though, that the doctors are finally taking you seriously.

When my little boy was born, he wouldn’t nurse. Oh, sure, he nursed like a champ the first 48 hours in the hospital. Or we thought he did. (What can a first-time mom and the drop-by lactation specialist really observe in those first few hours after labor, though?) When we got him home, though, he wouldn’t nurse. We were committed to breastfeeding and pushed through it, with regular trips to the doctor, the lactation consultant, books of all kinds, trying every hour or so, and he just wouldn’t (couldn’t?) get the hang of it. The hardest part? When the doctor said, “Look, babies have been learning to nurse for hundreds of thousands of years. He’ll figure it out.” We fed him with a syringe for weeks (to avoid nipple confusion), and kept talking to the lac specialist, and trying her suggestions, and it finally worked. He finally gained instead of lost weight, after dipping down to 5 pounds at several weeks of age. We were so thrilled to finally turn the corner. At that visit, the doctor, to his credit, apologized. When we had tearfully reported his comment to the lactation consultant in the same office, exhausted with frustration, she went and had a little chat with him. Not all babies figure it out. He sure got spanked that day!

So yes, moms have a better understanding of what their babies need.

All hope and cheer to you and your family.

]]> By: Sallyhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-596 Sally Sun, 01 Oct 2006 17:21:03 +0000 http://mostleast.com/?p=265#comment-596 I hope he's doing better this weekend! I've been thinking about you a lot the past few days. I hope he’s doing better this weekend! I’ve been thinking about you a lot the past few days.

]]> By: Kimhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-597 Kim Sun, 01 Oct 2006 14:10:12 +0000 http://mostleast.com/?p=265#comment-597 Just found your blog and wanted to give you a big cyber hug.It's great though that the doctor is working with you to diagnose the problem. Because my son's weight was on the acceptable range, I got ignored by doctors for months. My son screamed or rather shrieked in pain for the first three months of his life- every single waking moment and no one would help me. I would be at the doctor's office every other week crying- because I felt so helpless. When I finally got someone to listen to me, they started doing tests and realized that he had pretty severe reflux. He is on several meds a day, and I don't see us getting off of it anytime soon.He still spits up ALL the time at almost 7 months, and is allergic to a host of foods, and is now on the expensive hypoallergenic formula.The only thing that really kept us from being FTT was that he was a little porker from the beginning and liked eating- I end up feeding him twice as much as a normal kid (because most of it comes back up) and because he didn't feel good we would comfort feed all the time. Plus for the longest time he was silent refluxing...he would spit it up and then swallow it back down. Doubling the pain factor.Hugs to you! Just found your blog and wanted to give you a big cyber hug.

It’s great though that the doctor is working with you to diagnose the problem. Because my son’s weight was on the acceptable range, I got ignored by doctors for months. My son screamed or rather shrieked in pain for the first three months of his life- every single waking moment and no one would help me. I would be at the doctor’s office every other week crying- because I felt so helpless. When I finally got someone to listen to me, they started doing tests and realized that he had pretty severe reflux. He is on several meds a day, and I don’t see us getting off of it anytime soon.

He still spits up ALL the time at almost 7 months, and is allergic to a host of foods, and is now on the expensive hypoallergenic formula.

The only thing that really kept us from being FTT was that he was a little porker from the beginning and liked eating- I end up feeding him twice as much as a normal kid (because most of it comes back up) and because he didn’t feel good we would comfort feed all the time. Plus for the longest time he was silent refluxing…he would spit it up and then swallow it back down. Doubling the pain factor.

Hugs to you!

]]> By: jennsterhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-595 jennster Sat, 30 Sep 2006 22:56:32 +0000 http://mostleast.com/?p=265#comment-595 so sorry, but trust that things will be okay. you sound like you're on top of things and that's great. keep being aware- no one knows their child the way you do. so sorry, but trust that things will be okay. you sound like you’re on top of things and that’s great. keep being aware- no one knows their child the way you do.

]]> By: Jenhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-594 Jen Sat, 30 Sep 2006 18:14:39 +0000 http://mostleast.com/?p=265#comment-594 Oh man, I'm thinking about you and your family. As others have said, this is a good thing. But as a mom of one child who hit all the milestones and the other who has not (and who went from He's just a bit lazy, to we might be looking at a special school in one doctor's visit), I empathize. Keep pushing. We're in your corner. Oh man, I’m thinking about you and your family. As others have said, this is a good thing. But as a mom of one child who hit all the milestones and the other who has not (and who went from He’s just a bit lazy, to we might be looking at a special school in one doctor’s visit), I empathize. Keep pushing. We’re in your corner.

]]> By: Mommy off the Recordhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-593 Mommy off the Record Sat, 30 Sep 2006 07:37:17 +0000 http://mostleast.com/?p=265#comment-593 This is my first visit to your blog so I feel like a stranger commenting on such a personal post. Although it would be hard to hear that your son is "officially" failing to thrive, the positive thing is that the doctors will probably be paying more attention to his health now. And, hopefully, that will mean that Ben will get even better care then before. From how you described him (bouncing and smiley), it sounds like he has a wonderful spirit.(Thank you for visiting my blog and leaving a comment the other day.) This is my first visit to your blog so I feel like a stranger commenting on such a personal post. Although it would be hard to hear that your son is “officially” failing to thrive, the positive thing is that the doctors will probably be paying more attention to his health now. And, hopefully, that will mean that Ben will get even better care then before. From how you described him (bouncing and smiley), it sounds like he has a wonderful spirit.

(Thank you for visiting my blog and leaving a comment the other day.)

]]> By: mommydhttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-592 mommyd Sat, 30 Sep 2006 03:43:22 +0000 http://mostleast.com/?p=265#comment-592 Thank goodness you are on top of this and kept pushing. I swear if we don't do that as mothers are kids would be really screwed up. I am going through that with my son now. I kept hearing he would outgrow his knock knees and heart murmur until I switched doctors and now we are finally going to see the surgeons. I hope it is a good outcome for you and your son. Thanks for always checking in on me! Thank goodness you are on top of this and kept pushing. I swear if we don’t do that as mothers are kids would be really screwed up. I am going through that with my son now. I kept hearing he would outgrow his knock knees and heart murmur until I switched doctors and now we are finally going to see the surgeons. I hope it is a good outcome for you and your son. Thanks for always checking in on me!

]]> By: ellahttp://notesfromhome.com/2006/09/27/failure-to-thrive/comment-page-1/#comment-591 ella Fri, 29 Sep 2006 15:15:21 +0000 http://mostleast.com/?p=265#comment-591 Yes mm, you've read my feelings exactly: within the space of a couple of days it changed from don't worry, he's just 'finding his weight' to two days later, he needs investigating because he's failing to thrive. All along I knew he wasn't doing well and I know, stastistically, many underweight babies will have a growth spurt and won't reach the FTT diagnosis but I couldn't see how he could put on weight if he wasn't eating anything. Now we're on a slippery slope downwards and I feel like this could have been caught MUCH earlier. Thank you for your very kind comment, and all the kind comments here. They help, more than you know. Yes mm, you’ve read my feelings exactly: within the space of a couple of days it changed from don’t worry, he’s just ‘finding his weight’ to two days later, he needs investigating because he’s failing to thrive. All along I knew he wasn’t doing well and I know, stastistically, many underweight babies will have a growth spurt and won’t reach the FTT diagnosis but I couldn’t see how he could put on weight if he wasn’t eating anything. Now we’re on a slippery slope downwards and I feel like this could have been caught MUCH earlier. Thank you for your very kind comment, and all the kind comments here. They help, more than you know.

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