http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/ Life. Home. Parenting. Food. Geek. Wed, 08 Feb 2012 12:53:27 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1450 Deb Wed, 01 Apr 2009 17:05:28 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1450 I am so sorry to hear that. At this very moment I am sitting in the hospital with my 7 year old son waiting for our biopsy results. He too was diagnosed with minimal change disease and has not responded in the slightest to the steroids. I'm hopeful that today's results will come back with MCNS and they'll just have to change his meds a bit, but very aware that it could go a completely different way. I am thinking of you and know that I feel your pain. I am so sorry to hear that. At this very moment I am sitting in the hospital with my 7 year old son waiting for our biopsy results. He too was diagnosed with minimal change disease and has not responded in the slightest to the steroids. I’m hopeful that today’s results will come back with MCNS and they’ll just have to change his meds a bit, but very aware that it could go a completely different way. I am thinking of you and know that I feel your pain.

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1460 Jordan (MamaBlogga) Fri, 13 Mar 2009 19:44:21 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1460 I'm so sorry! You're in our thoughts & prayers. I’m so sorry! You’re in our thoughts & prayers.

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1459 Debs Sun, 01 Mar 2009 18:04:30 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1459 I'm so sorry. Hugs to you and William. I’m so sorry. Hugs to you and William.

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1458 Sarah, Goon Squad Sarah Fri, 27 Feb 2009 18:14:06 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1458 I'm so sorry. I’m so sorry.

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1457 working mum Thu, 26 Feb 2009 19:42:57 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1457 I'm so sorry to hear that. I've only just found your blog and at such a difficult time for you. I hope that things go well and that his condition is manageable. All the best, WM x I’m so sorry to hear that. I’ve only just found your blog and at such a difficult time for you. I hope that things go well and that his condition is manageable. All the best, WM x

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1456 More than Just a Mother Wed, 25 Feb 2009 15:43:51 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1456 Oh I'm so desperately sorry to hear this news. All I can tell you, as one who has plunged the very depths of despair, is that you will survive this, however hard it may seem. Oh I’m so desperately sorry to hear this news. All I can tell you, as one who has plunged the very depths of despair, is that you will survive this, however hard it may seem.

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1455 Sally Wed, 25 Feb 2009 02:08:59 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1455 I'm so sorry. If you ever think of anything we, your friends across the Internet, can do to help, please just ask. I'm thinking of you. I’m so sorry. If you ever think of anything we, your friends across the Internet, can do to help, please just ask. I’m thinking of you.

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1454 Susanna (A Modern Mother) Tue, 24 Feb 2009 19:40:14 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1454 So sorry you have to go through all this. We'll all send you good thoughts through blogosphere with hopes that William becomes well soon. So sorry you have to go through all this. We’ll all send you good thoughts through blogosphere with hopes that William becomes well soon.

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1453 Tara Tue, 24 Feb 2009 10:02:09 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1453 Hey there Just visiting for the first time and it's a bad time by the looks of things. I have no idea what FSGS is so will go back and read through your older stuff. I spent a lot of time with my son in hospital when he was 4 as he had to have surgery to remove a blockage in one of his kidney tubes and it was just the worst time. But children are brilliantly resilient and I found the best thing I could do for him was remain strong and upbeat because it seemed to reflect on him too. I wish you the very best for your whole family at this difficult time. x Hey there
Just visiting for the first time and it’s a bad time by the looks of things.
I have no idea what FSGS is so will go back and read through your older stuff.
I spent a lot of time with my son in hospital when he was 4 as he had to have surgery to remove a blockage in one of his kidney tubes and it was just the worst time. But children are brilliantly resilient and I found the best thing I could do for him was remain strong and upbeat because it seemed to reflect on him too.
I wish you the very best for your whole family at this difficult time. x

]]> http://notesfromhome.com/2009/02/23/diagnosed-fsgs-words-no-parent-should-have-to-hear/comment-page-1/#comment-1452 memeweaver Tue, 24 Feb 2009 10:01:17 +0000 http://mostleast.com/2009/02/23/words-no-parent-should-ever-have-to-hear/#comment-1452 You write a beautiful blog, and it's very sad to hear you're going through this. Best wishes to William and to all of you. Take care. You write a beautiful blog, and it’s very sad to hear you’re going through this. Best wishes to William and to all of you. Take care.

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