Eight words

by ella on June 25, 2009

in FSGS and Nephrotic Syndrome

He’s in a terrible mood: insomnia, bone pain in his feet, kidney pain and prednisolone rages are all combining this morning to make it, well, tricky is the least awful word I can think of to describe it. But if it’s tricky for me today, it’s an ongoing battle for him.

As we drop off Ben at preschool it is just me, him and the baby. He is quiet, tired, clearly in pain. He walks beside me down the hill to the car and whispers, ‘I wish the world wasn’t here any more‘, and I am floored by the sum of everything he is experiencing and feeling, expressed in those eight words.

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{ 2 comments… read them below or add one }

1 angelfeet June 26, 2009 at 1:51 pm

He has your love. There’s nothing else I can say. You are in my thoughts.

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2 Rosie Scribble June 27, 2009 at 10:54 pm

I was going to say the same as anglefeet. At least he has you and everything you are able to give him. Thinking of you all.

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