nephrotic syndrome

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Hospital, in two acts

It’s been a bit of a week here so I am revisiting this post which is quite timely. ******** There is a dichotomy to hospital visits when William is sick. There is the rising fever, the increasing lethargy or the developing complications, the few hours where I have an increasing sense of worry, developing into [...]

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Why I ask you to vaccinate your child

The side of vaccination you may not have thought about.

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Remission

We got lab results back today and my boy is officially in (medicated) remission! (If it seems like you have read this before, the last one didn’t last.) His blood results are looking fab. His albumin is still a bit low (although higher than it has ever been) and his cholesterol is still too high [...]

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How to cope when your child is diagnosed with a serious, chronic disease

It’s six months since William was diagnosed with FSGS. I think it is fair to say that I cried every day for about five months and it is really only in the last month that I have moved on to the next stage of coping. I don’t know what the stages are exactly, only that [...]

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When the future won’t be quite what you hoped it would be

I want to write about something else. I want to write about, think about, something other than my son having FSGS. But I can’t. It’s like a sort of grieving process. The first two weeks after he was diagnosed, Matthew and I were a mess. There was not simply the shock of being given such [...]

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